Parkinson's Foundation engagement report
@ParkinsonDotOrg - 111K followers on X
Measured over 49 original posts from a 30-day window, last computed on October 10, 2026.
Engagement
A typical post picks up 11 interactions against 111K followers, an engagement rate of 0.01%. Measured over 49 original posts, its engagement rate beats 20% of 20,444 tracked accounts of a similar size. That is a reason to look at how the audience behaves - reply depth, saves, whether the followers are recent - rather than a conclusion about it on its own. Posts are seen about 1.2K times each, and 0.923% of those impressions turn into an interaction. That is about 1.07% of the follower count, which is the gap between an audience on paper and an audience in a timeline. Posting runs at about 2 posts a day over the last 30 days, with activity on roughly 53% of days. Most posts go out around 12:00 UTC, and Friday is the busiest day of the week. Of the 49 posts sampled, 61% carry an image or video and 96% link out. The account's strongest tracked post pulled 42 interactions, about 3.8x its own typical post. Recurring topics include #move4pd, #párkinson.
Measured over 49 original posts from a 30-day window, last computed on October 10, 2026. Recurring tags: #move4pd, #párkinson.
Compared with accounts its own size
Parkinson's Foundation's engagement rate beats 20% of the tracked X accounts closest to it in follower count (20,444 accounts, accounts of similar size (decile 8 of 10)). A percentile is spread evenly by construction, so 50 really is the middle of that group and 90 really is its top tenth.
On engagement per impression rather than per follower it beats 39% of the same group. When those two numbers disagree, the gap is about how far its posts travel rather than how people react to them.
Where this sits in the catalog
At 0.01%, Parkinson's Foundation sits above the 10th percentile of the 205,582 accounts in this comparison. That places it in the bottom 25% band, which runs below 0.024%.
Show the percentile table
| Percentile | Engagement rate |
|---|---|
| 10th percentile | 0.004% |
| 25th percentile | 0.024% |
| 50th percentile | 0.143% |
| 75th percentile | 0.679% |
| 90th percentile | 2.56% |
| 99th percentile | 82.4% |
This ruler is the whole measured catalog, not a size-matched group: it shows where the raw rate falls across every account we can measure, all of which are large. For a like-for-like comparison, read the size-band percentile above instead. See how the bands are built
Posting timing
This account posts most often around 12:00 UTC, and Friday is its busiest day of the week. The bars below are the catalog-wide pattern, with this account's own busiest slot marked. They do not show how this account performs at each hour: we keep one aggregate per account, not one per hour, so that measurement does not exist in our data.
Show engagement by hour posted, utc as a table
| Hour (UTC) | Vs author median | Posts |
|---|---|---|
| 00:00 UTC | -1% | 89K |
| 01:00 UTC | -2% | 90K |
| 02:00 UTC | -3% | 88K |
| 03:00 UTC | -4% | 94K |
| 04:00 UTC | -5% | 76K |
| 05:00 UTC | -4% | 75K |
| 06:00 UTC | -5% | 86K |
| 07:00 UTC | -5% | 93K |
| 08:00 UTC | -4% | 108K |
| 09:00 UTC | -4% | 124K |
| 10:00 UTC | -3% | 129K |
| 11:00 UTC | -3% | 141K |
| 12:00 UTC | -3% | 154K |
| 13:00 UTC | -3% | 167K |
| 14:00 UTC | -4% | 173K |
| 15:00 UTC | -2% | 176K |
| 16:00 UTC | -3% | 171K |
| 17:00 UTC | -3% | 159K |
| 18:00 UTC | -2% | 149K |
| 19:00 UTC | -2% | 141K |
| 20:00 UTC | -1% | 131K |
| 21:00 UTC | 0% | 116K |
| 22:00 UTC | -2% | 100K |
| 23:00 UTC | -1% | 90K |
Show engagement by day of week as a table
| Day | Vs author median | Posts |
|---|---|---|
| Sunday | +5% | 393K |
| Monday | +1% | 483K |
| Tuesday | -2% | 520K |
| Wednesday | -3% | 472K |
| Thursday | -2% | 430K |
| Friday | -3% | 447K |
| Saturday | +2% | 393K |
Formats this account uses
Its own posting mix on the left, and what each of those formats does across every account we track on the right. Only formats where the effect clears our publish test appear here, so an empty row is a format we could not measure rather than one that does nothing.
| Format | This account | Catalog effect | 95% interval | Accounts behind it |
|---|---|---|---|---|
| Image or video | 61% of posts | +111% | +108% to +115% | 34K |
| Outbound link | 96% of posts | -41% | -42% to -40% | 32K |
| Typical length | - | +15% | +14% to +16% | 32K |
- 61% of this account's sampled posts carry an image or video. Across the catalog, posts with an image or video run 111% above the same accounts' other posts.
- 96% of its posts carry a link off X. Across the catalog, posts with an outbound link run 41% below the same accounts' other posts, so a large share of this account's output sits in the weakest bucket we measure.
- Its average post runs 389 characters, which falls in the over 280 characters band. Across the catalog, posts over 280 characters run 15% above the same accounts' other posts.
These are catalog-wide differences applied to this account's own posting mix, not a measurement of how each format performs for this account specifically. We keep one median per account, not one per format per account, so the second thing is not something this data can tell you.
Best tweets
- Sep 18, 20263.8x their median
"My dad was diagnosed with Parkinson's at the age of 35, which makes him 1/1000 of those diagnosed with Parkinson's before the age of 60. My entire life I have wanted to raise money for Parkinson's so nobody has to go through what I have watched my dad, and family, go through. Now is finally that time!" 🏃♀️➡️ In four weeks, Mary will join our Parkinson's Champions team of over 100 runners to take on the Chicago Marathon. 🩵 Support our Champions at https://t.co/Q2KmVnp2Tj. #run #ChicagoMarathon #Marathon #Parkinsons
- Oct 8, 20262.6x their median
🏙️🏃♀️This weekend, our Parkinson’s Champions are taking on the streets of Chicago for the Chicago Marathon—and we’ll be cheering every mile of the way! For Emily, this race is especially meaningful. After running with our team for her last three races, she’s taking on Chicago in honor of her dad, who was diagnosed with Parkinson’s in 2018. “Being able to do something I love—running—for this cause gives every mile a much greater purpose.” Her dad’s journey, supported by an extraordinary team of doctors and researchers, inspires Emily to keep moving forward—and to turn every mile into a step toward a better future for people living with Parkinson’s. Emily and every Parkinson’s Champion running Chicago this weekend: we’re behind you! 🙌 Want to cheer them on from wherever you are? You can support the team and help make every mile count at https://t.co/Q2KmVnp2Tj. #Run4PD #Parkinsons #run #ChicagoMarathon
- Sep 30, 20262.6x their median
“The FDA approval of tavapadon is a momentous occasion, as the Parkinson’s community has waited more than 50 years for new, improved medication options," says Sneha Mantri, MD, MS, FAAN, chief medical officer at the Parkinson’s Foundation. "I am very encouraged by the safety and efficacy data that I have seen from the drug’s clinical trials and am hopeful that people in varying stages of the disease will benefit from it." 🔗 Learn more about tavapadon and other dopamine agonists for PD: https://t.co/9YuNjNJOQA
- Oct 6, 20262.5x their median
✨🏃♀️ A little Disney magic. A lot of Champion spirit. 🩵 Later this month, our Parkinson’s Champions are running the Disney Wine & Dine Half Marathon Weekend for loved ones and a future without Parkinson’s. For Jodi, the mission is personal: “Raising awareness and funding research is the why.” Support the team: https://t.co/qUkSt69F6F. #runDisney #Parkinsons #run
- Sep 25, 20262.5x their median
Falls are common for people with Parkinson’s, but there are ways to reduce the risk of injury. ⚠️ Knowing what to do when you feel yourself falling can help you fall more safely. For National Falls Prevention Awareness Week, watch below to learn safe falling techniques and explore additional tips for preventing falls at: https://t.co/CyePGIZ4LE Special thanks to: @AbilityLab, @thisisUIC, @mitra_afshari, and Mitra Afshari, MD MPH, and Miriam Rafferty, DPT, PhD.
- Oct 9, 20262.0x their median
The Parkinson's Foundation is advocating for policies that train and support more healthcare professionals in Parkinson’s care, expand access to specialists and rehabilitation, and improve care regardless of where someone lives. Learn more about our policy priorities: https://t.co/Nf6WehkLFf For help building your care team, contact our free PD Helpline: 1-800-4PD-INFO (1-800-473-4636) | [email protected]
- Sep 28, 20261.8x their median
Researchers are finding new ways to measure how Parkinson’s disease progresses. 🔬 This could help make way for disease-modifying therapies; interventions that may slow, stop or possibly reverse brain changes in Parkinson’s. Learn more about research breakthroughs and where to exercise caution: https://t.co/GTSFKiWZ2Q
- Sep 25, 20261.8x their median
By the time most people are diagnosed with Parkinson’s disease, the condition has often been developing quietly for years. Finding ways to detect Parkinson’s during this early window — before the typical tremors, stiffness and slowness that lead to a diagnosis become obvious — is a major goal of research, because earlier identification could improve outcomes through earlier treatment and better care. A new study suggests that subtle changes in how people walk may be detectable up to nearly seven years before a Parkinson’s diagnosis — and that an ordinary wrist-worn device, similar to a fitness tracker, may be able to detect those changes. 🔬 Learn more in our latest Science News article: https://t.co/fbAo3k4m08
- Sep 22, 20261.8x their median
🧠 Learn about cognitive changes that can accompany Parkinson's disease: https://t.co/NbUpuZcleG
- Oct 7, 20261.7x their median
Think about bringing someone you trust with you to your next doctor visit. They can support you by: 📝 Taking notes and helping understand what your doctor said. 💬 Helping you bring up any difficult topics. 🔔 Reminding you of your next steps- it’s easy to forget! 🤝 Just being there with you so you don’t feel alone. They could even join by phone or video! Learn more ways you can prepare for your next appointment by visiting: https://t.co/wbUc20aKR5
Ranked by total interactions across everything we have tracked for this account, which is a longer history than the 30-day window the rates above use. The multiple compares each post to this account's own median.
Recurring topics
The most frequent hashtags in the sampled posts. They describe what this account writes about; they are not a performance signal, and the catalog-wide breakdown on the hub shows how little hashtag count moves.
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Reading these numbers
A typical post picks up 11 interactions against 111K followers, an engagement rate of 0.01%. Measured over 49 original posts, its engagement rate beats 20% of 20,444 tracked accounts of a similar size. That is a reason to look at how the audience behaves - reply depth, saves, whether the followers are recent - rather than a conclusion about it on its own. Posts are seen about 1.2K times each, and 0.923% of those impressions turn into an interaction. That is about 1.07% of the follower count, which is the gap between an audience on paper and an audience in a timeline. Posting runs at about 2 posts a day over the last 30 days, with activity on roughly 53% of days. Most posts go out around 12:00 UTC, and Friday is the busiest day of the week. Of the 49 posts sampled, 61% carry an image or video and 96% link out. The account's strongest tracked post pulled 42 interactions, about 3.8x its own typical post. Recurring topics include #move4pd, #párkinson.
- What is Parkinson's Foundation's engagement rate on X?
- Parkinson's Foundation (@ParkinsonDotOrg) has an engagement rate of 0.01%, based on the median interactions across 49 original posts from the last 30 days against 111,476 followers. Replies, reposts and quote-posts of other people are excluded from that sample.
- Is that a good engagement rate?
- At 0.01%, Parkinson's Foundation sits above the 10th percentile of the 205,582 accounts in this comparison. Those comparison accounts are all large ones, because our scanning cadence is weighted towards big accounts, so this is a ranking among peers of similar scale rather than a ranking across X.
- Does @ParkinsonDotOrg have real engagement?
- Its engagement rate beats 20% of the tracked X accounts closest to it in follower count (20,444 accounts), which puts it in the bottom quarter for its size group. Ranking inside a size band matters because engagement rate falls as accounts grow, so a raw rate would mostly re-measure the follower count. It is a starting point for a look at follower quality, not a verdict on it.
- When does @ParkinsonDotOrg post?
- Most posts go out around 12:00 UTC, and Friday is its busiest day, at roughly 2 posts per day across the measured window.